Warning: contains GIFs
A lovely reader (Hi, Naomi!) suggested I conclude my Beginner’s Guide to ME/CFS with a “day in the life”, to illustrate what it is like to live with this illness. I won’t lie to you: this piece is long, mundane and tedious, but so is living with chronic illness. It is boring. There are no breaks. And the little things that you wouldn’t even think about, like showering, watching TV and leaving the house, form the greatest challenges of my day.
Unfortunately, my health has deteriorated significantly since writing this piece, so it isn’t an accurate reflection of how I live now. Rather, it stands as a record of what was probably one of the most “well” and functional periods I have had in the last 6 years, and serves as a goal for me to aspire to. I’ll update with more on my relapse when my health has stabilised some. (EDIT: you can read more on my relapse in my post, Relapses: Fear and Loathing in Chronic Illness.)
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