In the Folds Wide Leg Pants, take two

Siobhan, a Disabled white woman, stands against an antique wardrobe. She wears wide leg, mustard tan coloured corduroy pants with large patch pockets and elastic waist, and a white button up shirt.

Have you ever browsed through Peppermint Magazine Sewing School? They have a bunch of rad patterns made by indie pattern designers available for free!* I’ve made the In the Folds Wide Leg Pants before, but they were a snug fit. This time, I altered the pattern to make them elastic waisted and much more generously sized.

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A wool blanket coat – Muna and Broad Grainger

Siobhan, a white Disabled woman, stands in a garden arch. She wears an outrageous orange and yellow check oversized wool coat with dropped sleeves and twill binding, pink lounge pants, and tan suede block heel boots. She leans on a pink walking stick and has a rollator behind her. She is smiling.

After a long hiatus from sewing, I decided I needed to ease my way back in with a simple project. Naturally, I ended up sewing a winter coat made from a check wool which used a binding technique unfamiliar to me.

The pattern was the Muna and Broad Grainger Coat, and the fabric a fabulous check wool blanket whose orange-yellow tones called to me from the linen cupboard. It was originally made in Warrnambool, and I think I bought it at the op shop for $2? I’m usually opposed to chopping up perfectly good woollen blankets to make tacky coats, but my desire to basically wear a wool blanket all winter won out.

Siobhan, a white Disabled woman, stands in a garden arch. She wears an outrageous orange and yellow check oversized wool coat with dropped sleeves and twill binding, pink lounge pants, and tan suede block heel boots. She is seated on a rollator and leans on a pink walking stick. She is smiling.

The Grainger is a fairly simple sew, for a coat: it’s unlined and calls for quilted fabric (either pre-quilted or DIY’ed). Obviously, I skipped this route, and a lining, as the wool was beautifully soft on its own. The edges are bound with your choice of binding, as are the from patch pockets. I chose to use a 25mm natural cotton twill tape, after spending far more time than I care to admit in the Lincraft trim section.

Continue reading “A wool blanket coat – Muna and Broad Grainger”

Saddle shoulder jumper

The second in my “I made this months years ago and only had the energy to post about it now” series is this knitted saddle shoulder jumper. I’d wanted to knit a saddle shoulder jumper for a while, but never found the right pattern. Seeing as I alter most patterns I use beyond recognition anyway, I figured it was the right time to just draft the damn thing myself.

Siobhan stands at her rollator, wearing a handknit brown fluffy saddle shoulder jumper, black jeans and ankle boots.
I am actually wearing the turtleneck tops I just blogged here. Obviously these photos were taken in the middle of winter, 6 months ago!

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The Support Worker Paradox

A kitchen bench with huge plastic containers filled with fried rice and chicken soup cooked by a support worker, in front of a bunch of spring onions.

Letting support workers into your life as a Disabled/Ill person is challenging. Not only are you asking them to do tasks you would usually do for yourself, you are inviting complete strangers to your home to view you at your most vulnerable.

What if you don’t get along? How do I employ someone? What if they’re set in their ways, and don’t want to adapt to my circumstances? What if their profile on HireUp talks about how they think children with disabilities are a blessing from God who inspire them to get out of bed every day?

That’s not even mentioning that with ME/CFS, being around people and stimulation in general is my kryptonite?*

Since mum’s circumstances have changed so dramatically due to a new diagnosis, we now have 4 support workers (or PAs) come to us a week, plus garden/yard maintenance. We are lucky to have gathered such an understanding team around us, but it took so much time and energy to accomplish. I’m still not quite comfortable with having new people in my space, and this new life.

*Hence the title of this post: am I so sick that I can’t do things for myself, but can’t stand having people around doing them for me either?

(Moral) Panic! At the Disco: Disabled People Have Sex Too

A full pink rose.

My hero for today is the woman with MS who, in pre-pandemic times, fought NDIA (National Disability Insurance Agency) in court for her right to have a sex therapist funded. Bloody legend. Disabled people have as much of a right to consensual sexual expression as everyone else, and if sex toys and Tinder are physically out of the question (yes, this was assessed in the case) then hiring a sex therapist who specialises in clients with disabilities seems a logical choice.

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2020, a summary

I don’t want to be like every think piece from the past 8 months that begins with “in these unprecedented times”, so I’ll just update you briefly on what 2020 has brought for me. I started with health crises in the family and a whopping concussion, then a massive relapse which led to me needing my powerchair in my own home, a first for me.

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Yes, Virginia, I sewed this year: Sort-of self drafted turtleneck tops

Nothing like the end of year for some slapdash posting about the garments I made in 2020. To be honest, I didn’t sew or knit that much: between my concussion, other family member’s debilitating health concerns, a massive relapse and living in a society with people who value their desire for a monthly holiday over Disabled people’s right to live, my brain and body were in no state for any kind of demanding motor/mental task.

Two images of Siobhan sitting down wearing black and grey turtleneck tops.
Please enjoy my truly atrocious COVID self-haircut.

Anyway, I made a few things, including these tops. Like many others, this project was born of a need for a specific garment in my wardrobe: a long sleeved turtleneck top, semi-fitted, with the collar close enough to keep me warm, but loose enough to allow room to breathe. Particular, I know! I looked and looked for patterns but didn’t find any that fit the bill, so turned to a TNT (tried ‘n’ true) t shirt pattern for a base. Continue reading “Yes, Virginia, I sewed this year: Sort-of self drafted turtleneck tops”

The timeless place

A hibiscus plant with bright pink flowers as viewed through a cobwebbed window, symbolising Siobhan's separation from the outside world.
A tropical paradise or a decaying spider’s delight, you decide.

Having ME/CFS is like being stuck in a timeless place, while the world passes you by. In my mind, I’m still 20. I’ve just finished uni, and I’m waiting to start my honours degree. My friends are still living here and I’m not long out of school.

In reality, 10 years have passed. My younger brother will soon surpass me in academic achievement. People have moved away. Weddings, funerals, celebrations pass and I am not a part of them.

I’ve missed a lot, but one of the hardest things in my time being ill will be missing my grandfather’s funeral this week. He passed on Christmas Day. The whole family, gathered to mourn his passing, while I am in the Chronic Illness Twilight Zone, unable to mourn, grieve and move on.

The whole world moves on, and I can’t go with it.

Aboriginal man denied medical care in custody

In June 2020, a nurse working for the Warrnambool police station refused to provide court-ordered medical treatment for an Aboriginal man in custody. Despite this person experiencing multiple medical conditions including paranoid schizophrenia, an intellectual disability, alcohol withdrawal and auditory hallucinations, the nurse decided she was “under no obligation to listen to a magistrate” and chose not to call a doctor.

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Socratic questioning

For a change of pace, I thought I’d share something I’ve had stuck next to my bed for at least the past 12 years. It’s a table of beliefs and socratic questions which challenge those beliefs. Naming and challenging unhelpful beliefs is a cornerstone of therapies such as CBT (cognitive behavioural therapy).*

When you live with chronic illness, sometimes you find yourself facing dark thoughts – I know I relate to many of these beliefs (such as needing a correct solution to every problem)! You might relate to some, or not any of these, but I hope you find this table and line of thinking helpful.

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