ME/CFS & Chronic Illness:
For those new to ME/CFS, I’ve published a five-part Beginner’s Guide to ME/CFS on my blog, which covers everything from statistics, to treatment, severe ME and the trouble with its name.
Check out my Electrolyte Drink Mega-Review for a comparison between many electrolyte/hydration drinks on the market.
I go over the basics of compression garments in my post Under pressure – compression garments & POTS.
Emerge Australia: the ME/CFS association of Australia. Provides information and advocates for ME/CFS sufferers. If you become a member, they publish a regular magazine. They have a wealth of information on their website, a telehealth nurse for ME/CFS patients and even worked with ThinkGP to publish an educational module for general practitioners.
Some of their resources:
– What is ME/CFS?
– ME/CFS for Health Professionals
– Teleheath Nurse
– ThinkGP ME/CFS educational module
Griffith Centre for Neuroimmunology: based in Queensland. Does ground-breaking research into the biological markers of ME/CFS. Their published papers are well worth reading if you have the time or spoons. You can sign up to participate in research and donate to support their work.
Unrest is hands-down the most accurate portrayal of ME/CFS I’ve seen in my life. It is also a very well-made film which won an award at Sundance film festival. An absolute must-watch for anyone with ME/CFS or those who wish to understand more about it.
A Sudden Illness by Laura Hillenbrand: essential reading for anyone suffering from ME/CFS, their partners, family and friends. I reread it frequently, and it never fails to take my breath away. She has written books such as Seabiscuit and Unbroken, and her health seems to have improved markedly in recent years.
Living with M.E. by Charles Shepherd: a comprehensive overview of ME/CFS by a UK GP who has suffered from it himself. It is one of the few books which I have found helpful and representative of my experience with the illness.
For those interested in coping with chronic illness from a mindfulness perspective, Toni Bernhard has written three books on the topic: How to Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers; How to Wake Up: A Buddhist-Inspired Guide to Navigating Joy and Sorrow; and How to Live Well with Chronic Pain and Illness: A Mindful Guide. You can also read her blog on Psychology Today, Turning Straw Into Gold.
The M.E. Association (UK) is full of information and offers a support line.
The Open Medicine Foundation is doing amazing things in terms of research for ME/CFS.
In Victoria, Australia, Maurice Blackburn offer a free legal aid service for those with disabilities. They also run seminars on your rights as a disabled person. Contact them if you are in a legal quandary (such as a battle with Centrelink).
I have a few vintage diagram patterns uploaded on Flickr. You follow the measurements indicated on the diagram, filling in your own measurements, for perfectly-fitted lingerie. Click the individual pictures below or browse the album.
I’ve scanned in some vintage knitting pattern booklets for all to enjoy. You can find them on my Flickr or by clicking the images below.