CW: neglect, death, possible manslaughter of a disabled person
Ann-Marie Smith was a 54-year-old woman with Cerebral Palsy. She lived alone in Adelaide, South Australia. And on 6 April 2020, Ann-Marie died from severe septic shock, multi-organ failure, severe pressure sores and malnutrition.
If you’ve been involved at all with the ME/CFS community, you will be well aware of the significance of the release of Unrest, the independent documentary by debut filmmaker Jennifer Brea about the illness. If not, it’s hard to overstate the important of this film for people with ME/CFS. Ours is a story that is not told in the mainstream media, or one that is so poorly represented that it usually makes a mockery of our lives. Continue reading “So I watched Unrest”
Just a heads up that I’ve had another piece published, regarding racism in the AFL. You might recall I wrote about footballer Adam Goodes earlier in the year – how his unapologetic stance against outrageousracism from fans and players cost him his position in the AFL. Another player, Héritier Lumumba, has recently had his career cut short by similar racial abuse. The fact that he stood up against racial slurs, sexism and homophobia in the sport made him a prime target for those who believe minority groups should be seen and not heard.
Last week, I received my voting form for the Australian Marriage Law survey. Thanks to the political will of the Coalition Federal Government, Australians now have the opportunity to cast their potentially meaningless vote on the legalisation of same-sex marriage via an unnecessary and divisive postal survey. Costing $122 million, the survey is non-binding*, and several Liberal MPs, including almost half of South Australian representatives, have already claimed they will not acknowledge a “yes” vote.
Recently I was lucky enough to have two pieces of my writing published. The first was for a popular Australian lifestyle website, Mamamia, entitled, “Seven things you probably don’t know about chronic fatigue syndrome.” I was very grateful for the opportunity to share my experience of ME/CFS with a wider audience, and it was well-received within the Aussie ME/CFS community.
Hi folks! Just an update that I’ve had another story published on The Mighty. It is about the continual process of grieving through chronic illness, and how so few people can really cope with others’ grief.
Every year, Gillian of Crafting a Rainbow hosts a Top 5 of 2016 round-up, whereby members of the online sewing community share their top 5 hits, misses, highlights, reflections and goals. I haven’t been blogging long enough to do a full post on each category, so today I’ll share one from each. Continue reading “Top 5 of 2016”
Hi folks! Just a short note to say I had an opinion piece published in my local paper about disability access in Warrnambool. The state of shop access and disabled parking bays in town is abysmal, yet with council elections coming up, no candidate has made disability advocacy a priority. I want that to change.